The Indigenous Cultural Understandings of Alzheimer’s Disease and Related Dementias – Research and Engagement (ICARE) project aims to better understand Indigenous lived experience of Alzheimer’s disease and related dementias across the disease trajectory in order to better inform the creation of culturally appropriate and safe approaches to improve dementia diagnostics, care, and outreach.
The ICARE project is conducted in partnership with seven First Nations on Manitoulin Island, Ontario, Red Lake and Grand Portage Tribal Nations in Minnesota, and the Oneida Nation in Wisconsin. Each site is guided by a local community based advisory board, council, or group. We worked with leadership and advisory members at each site to hire community-based
researchers to assist with all aspects of the research.
The ICARE newsletters are produced twice a year and provides updates on the research activities taking place in each community.
Funding: This research was generously supported by the National Institute on Aging (1R56AG062307-01, R01AG062307 PI: Jacklin).
Memory Keepers Medical Discovery Team, University of Minnesota Medical School, Duluth and Minnesota at
large: Dr. Kristen Jacklin (PI), Dr. Wayne Warry, Dr. Jordan Lewis, Dr. Melissa Blind, Dr. Dana Ketcher, Brooke Metz, Melinda Dertinger, Brandylyn Arrendondo, Patrick Bright, Tracy Kemp, Collette Pederson, January Johnson, Red Lake Nation, Grand Portage Band of Lake Superior Chippewa.
University of Wisconsin Alzheimer’s Disease Research Institute: Dr. Carey Gleason (site PI), Dr. Megan Zuelsdorff, Dr. Nikolas Lambrou, Marlene Summers, Lois Strong, Wes Martin, and the Oneida Nation.
Ontario, Canada: Seven First Nations on Manitoulin Island (Wikwemikong Unceded Reserve, M'Chigeeng First Nation, Sheguiandah First Nation, Sheshegwaning First Nation, Wauwauskinga First Nation, Zhiibaahaasing First Nation, Aundeck Omni Kaning First Nation), Wikwemikong Health Centre, Mnaamodzawin Health Services, Noojmowin Teg Health Centre, M'Chigeeng Health Services, Rhonda Trudeau, and Karen Pitawanakwat.