© 2019 I-CAARE

Dr. Kristen Jacklin founded the Indigenous Cognition & Aging Awareness Research Exchange (I-CAARE) in 2015. Click here for more information.
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Articles & Reports

Articles in Academic Journals

 

2016

 

Pace, J., Jacklin K. & W. Warry. Perceptions of Dementia Prevention among Manitoulin Island First Nations, In Indigenous peoples and dementia: Experiencing and Understanding Memory Loss and Memory Care in Three Settler Nations. Wendy Hulko, Jean Balestrery & Danielle Wilson eds. Proposal accepted by UBC Press.

 

Walker, J & Jacklin, K. Current and Projected Dementia Prevalence in First Nations Populations in Canada, In Indigenous peoples and dementia: Experiencing and Understanding Memory Loss and Memory Care in Three Settler Nations. Wendy Hulko, Jean Balestrery & Danielle Wilson eds. Proposal accepted by UBC Press.

 

Bourassa, C., Blind, M., Jacklin, K., Oleson, EJ., Ross-Hopley, K. The Understanding From Within Project: Examining Aboriginal Women’s Experiences of Dementia, In Indigenous peoples and dementia: Experiencing and Understanding Memory Loss and Memory Care in Three Settler Nations. Wendy Hulko, Jean Balestrery & Danielle Wilson eds. Proposal accepted by UBC Press.

2015

 

Jacklin, K., Pace, J., Warry, W. Informal dementia caregiving among Indigenous communities in Ontario, Canada. Care Management Journals, 16(2), 106-120.

 

Warren, L., Shi, Q., Young, K., Borenstein, A., Martiniuk, A. Prevalence and incidence of dementia among Indigenous populations: a systematic review. International Psychogeriatrics. 27(12): 1959-1970.

 

2013

 

Jacklin, K. M., Walker, J. D., Shawande, M. The emergence of dementia as a health concern among First Nations populations in Alberta, Canada. Canadian Journal of Public Health, 104(1), 39-44. Retrieved from: http://journal.cpha.ca/index.php/cjph/article/view/3348.

 

2012

 

Jacklin, K. and Warry, W. “They knew who she was”: toward an understanding of diagnosis and care of people with dementia in Aboriginal communities. Alzheimer’s Association International Conference Proceedings (pg. 431).

 

Jacklin, K; Warry, W; Pace, J. Using Participatory Approaches to Explore Aboriginal Understandings of Dementia and Dementia Care. The Gerontologist Volume: 52 Pages: 458-458

 

Jacklin, K. and W. Warry. Decolonizing First Nations health. Chapter 20, pp 373-389, in J.C. Kulig and A.M. Williams, eds. Health in Rural Canada. Vancouver, British Columbia: UBC Press.

 

Warry, W. Introduction to Conference Report, Health and Aging in Native North American Communities. Anthropology and Aging Quarterly, Vol 33, No 1.

 

Harman, R. & Warry, W. Robert Harman and Wayne Warry Discussion to Conference Report, Health and Aging in Native North American Communities, Anthropology and Aging Quarterly, Vol 33, No 1.

 

Jacklin, K. and Warry, W.  "Forgetting and forgotten: Dementia in Aboriginal seniors." Anthropology & Aging Quarterly 33(1): 13, 21.

 

2011

 

Hampton, M., Hampton, J., Saul, G., Bourassa, C., Goodwill, K., McKenna, B., McKay-McNabb, K., & Baydala, A. Stories through video: Aboriginal elders speak about end of life. In J. Bacsu & F. Macqueen Smith (Eds.), Innovations in Knowledge Translation: The SPHERU KT Casebook, 19-22.

 

2010

 

Hampton, M., Baydala, A., Bourassa, C., McKay-McNabb, K, Placsko, C., Goodwill, K., McKenna, B., McNabb, P., Boekelder, R. Completing the Circle: Elders Speak About End of Life Care with Aboriginal Families in Canada, Journal of Palliative Care, 26(1), 5-13.
 

Bourassa, C., Hampton, M., Baydala, A., Goodwill, K., McKenna, B., McKay-McNabb, K., Saul, G., Clarke, V., Christiansen, J., Jackson, M., Novik, N., Millman, C. Completing the Circle: End of Life Care with Aboriginal Families, The Exchange, Canadian Virtual Hospice.

Community Reports

 

2014

 

Jacklin, K., Warry, W. and Blind, M. Perceptions of Alzheimer’s Disease and Related Dementias in Aboriginal Peoples in Ontario: Sudbury Community Report (64 pages). Submitted  to: Sudbury-Manitoulin Alzheimer’s Society; N’Swakamok Indian Friendship Centre.

 

Jacklin, K., Warry, W. and Blind, M. Perceptions of Alzheimer’s Disease and Related Dementias in Aboriginal Peoples in Ontario: Six Nations Community Report (57 pages). Submitted to: Six Nations Health Services

 

Jacklin, K., Warry, W. and Blind, M. Perceptions of Alzheimer’s Disease and Related Dementias in Aboriginal Peoples in Ontario: Ottawa Community Report (54 pages). Submitted to: Odawa Friendship Centre, Ottawa.

 

2013

 

Jacklin, K., Warry, W. and Blind, M.  Perceptions of Alzheimer’s Disease and Related Dementias in Aboriginal Peoples in Ontario: Moose Cree First Nation Community Report (58 pages). Submitted to: Moose Cree First Nations Health Services

 

Pace, J., Jacklin, K. and Warry, W. Perceptions of Alzheimer’s Disease and Related Dementias in Aboriginal Peoples in Ontario: Manitoulin Island Report, (53 pages). Submitted to: Wikwemikong Health Services Committee, Wikwemikong Health Centre; Noojmowin Teg Health Centre; Mnaamodzawin Health Board, Mnaamodzawin Health Services; M’Chigeeng Health Centre.

 

Jacklin, K., Warry, W. and Dietrich, D. Perceptions of Alzheimer’s Disease and Related Dementias in Aboriginal Peoples in Ontario: Thunder Bay Community Report (51 pages). Submitted to: Thunder Bay Indian Friendship Centre and Anishinaabe Mushkiki Health Centre.

Research Reports

 

2015

 

Jacklin, K. and Warry W. Developing First Nations Dementia Factsheet Material: Methodology Report. For Health Canada, First Nations and Inuit Health, Home and Community Care Program, Health Funding Contribution Agreement HQ150013.

 

Bourassa, C. & Bendig, M. Experiences of First Nations, Inuit and Métis people with advanced cancer illness and at the end of life: KT Tools Project Literature Review and Current State. Winnipeg: Canadian Virtual Hospice.

 

2012

 

Jacklin, K. and Walker, J. Trends in Alzheimer’s Disease and related dementias among First Nations and Inuit. Prepared for Health Canada, First Nations and Inuit Health, Home and Community Care Program (70 pages).

 

Jacklin, K. International Indigenous Dementia Research Network Meeting Report. Ancillary Meeting of the Alzheimer’s Association International Conference July 16, 2012. DOI: 10.13140/RG.2.1.1502.6724

 
 

Conference Presentations

 

2017

Jacklin, K. (2017) Culturally Safe Care for Indigenous Loved Ones and Caregivers. First Nations and Inuit Health Forum, Halifax, Nova Scotia. February 27-28, 2017.

2016

Jacklin, K (2016) Community-Based Research. Canadian Consortium on Neurodegeneration in Aging Partner Forum “Importance of Stakeholder Engagement” October 7, 2016. Vancouver, BC.

Jacklin K., Pitawanakwat K., Walker J. A community-based Approach to Understanding Issues in Dementia Care for Indigenous Populations in Canada. February 22, 2016. Chiefs of Ontario Data Symposium, Toronto. (Poster Presentation) 

Jacklin K, Warry W., Pitawanakwat K., Blind, M. Considerations in Culturally Safe Care for Indigenous People with Dementia in Canada. Alzheimer’s Association International Conference, July 25th, 2016, Toronto, Ontario. (Oral Presentation, Featured Research Session). Presenting Author: Kristen Jacklin

O'Connell, M., Gould, B., Scerbe, A., Morgan, D., Carter, J., Bourassa, C., Jacklin, K., Warry, W. (2016). Worries about maintaining independence of rural/remote older adults: Opportunities for technology development. AGE-WELL 2nd Annual Conference & AGM, October 18-20, 2016, Montreal, Quebec, Canada. Poster Presentation (O’Connell).

O'Connell, M., Gould, B., Scerbe, A., Morgan, D., Carter, J., Bourassa, C., Owl, N., Jacklin, K., Warry, W. (2016). Unmet needs of rural/remote older adults: Opportunities for technology development. AGE-WELL 2nd Annual Conference & AGM, October 18-20, 2016, Montreal, Quebec, Canada. Poster Presentation (O’Connell).

Karen Pitawanakwat, Kristen Jacklin, Melissa Blind, Megan O’Connell, Wayne Warry, Jennifer Walker, Janet McElhaney, Brock Pitawanakwat, Kate Smith, Dina LoGiudice, Leon Flicker. Adapting the Kimberly Indigenous Cognitive Assessment for use with Indigenous Adults in Canada. Alzheimer’s Association International Conference, July 25th, 2016, Toronto, Ontario. (Oral Presentation). Presenting Author: Karen Pitawanakwat

Walker J (co-presenter), Jones C (co-presenter), Jacklin K (co-presenter), Loft D, Andrew M, Bronskill S, Henry D, McElhaney J, Smylie J, Warry W. First Nations-Driven Aging Research: Unlocking Health Information for Older First Nations Populations. First Nations Research Symposium. February 22, 2016. Toronto, Ontario. (Poster Presentation)

Webkamigad S, Jacklin K., Cote-Meek S. & Pianosi, B. Dementia Health Literacy Among First Nations People in Ontario: Integrating Western and Indigenous Understandings. Alzheimer’s Association International Conference, July 25th, 2016, Toronto, Ontario. Poster Presentation (Webkamigad)
 

2015

 

Blind, M. “Understanding the Challenges in Accessing Health Care services for Indigenous people with Neurological Conditions in Canada: a multi- site approach” Native American & Indigenous Studies Association Conference. Washington, D.C.

 

Blind, M. “Understanding from Within: Exploring the Impacts of Neurological conditions on Aboriginal women, their families and communities”. Presented for Indigenous Studies Research Methods with Dr. Brock Pitawanakwat, University of Sudbury.

 

C. Ozog, C. Bourassa, M. O’Connell, D. Morgan, K. Jacklin, W. Warry, J. Carter, B. Gould, K. Pitawanakwat, & M. Josdal. “Dementia Among Indigenous People: The Potential Role of Technology as a Health Care Support”. Poster Presentation, Canadian Association on Gerontology 44th Annual Scientific and Educational Meeting, Calgary, AB.

 

Jacklin, K. Locating Dementia in the Indigenous Worldview. 8th Canadian Conference on Dementia. Ottawa, Ontario, Canada.

 

Jacklin, K., Blind, M., Pitawanakwat, K., Warry, W. Perspectives on Healthy Aging Shared by Indigenous Peoples in Ontario, Canada. International Association of Gerontology and Geriatrics Asia/Oceania Regional Congress

 

Jacklin, K. From Perceptions to Praxis: The Study of Age-related Dementias with Indigenous Peoples in Canada. Canadian Rural Research Society 14th Annual Conference. Edmonton, Alberta Canada.

 

Jacklin, K. What Qualitative Community-Based Research Reveals about the Experience of Dementia in Indigenous Communities in Ontario. Trent Centre for Aging and Society. Critical Intersections: Mild Cognitive Impairment, Aging and Dementia in Theory and Practice.

 

Jacklin, K and Warry, W. First Nations Dementia Fact Sheets Development. First Nations and Inuit Health, Home and Community Care. Ottawa, ON.

 

Jacklin, K. and Warry W. Perceptions of Alzheimer’s Disease and Related Dementias Among Aboriginal Peoples in Ontario. Mnaamodzawin Health Services Board, Sheshegawaning and Zhiibaahaasing First Nations Community Presentation. Sheshegawaning Community Centre.

 

Jacklin, K., Bourassa, C., Blind, M., Warry, W., Walker, J., McElhaney, J., Pitawanakwat, Brock., Crowshoe, L.,  Pitawanakwat K. Developing a community-based approach to understanding issues in dementia care for Indigenous populations in Canada. 8th Canadian Conference on Dementia. Ottawa, Ontario, Canada.

 

Khan S, Walker, J. (presenter), Henry D, Antone T, Jones C. First Nations health data linkage: A collaborative indigenous research and governance approach. FARR Institute International Conference. St Andrews, Scotland UK.

 

Walker, J. (presenter), Duchen R, Khan S, Jones C, Henry D, Antone T. Data as medicine: Unlocking health information for Indigenous communities. FARR Institute International Conference. St Andrews, Scotland UK.

 

Walker, J. (presenter). Frailty Among First Nations Seniors in Canada. International Association of Gerontology and Geriatrics Asia/Oceania Regional Congress

 

Bronskill S, Walker, J, Maxwell C (presenter), Yates E, Gunraj N. Health system use, transitions to long-term care and survival among community-dwelling older adults with dementia in Ontario, Canada. Alzheimer’s Association International Conference. Washington DC.

 

Warren, L (presenter). Prevalence and Incidence of Dementia Among Indigenous Populations: A Systematic Review. 8th Canadian Conference on Dementia. Ottawa, Ontario, Canada.

 

Warry, W (presenter). Symposium 18: Challenges in Indigenous Aging. International Association of Gerontology and Geriatrics Asia/Oceania Regional Congress.

 

Warry, W (presenter). Symposium 20: Designing Services for Older Indigenous People. International Association of Gerontology and Geriatrics Asia/Oceania Regional Congress.

 

Webkamigad, S. (presenter), Jacklin, K., Warry, W., Blind, M., Viau, K. Enhancing A Circle of Care:  Developing Culturally-Grounded Dementia Information Materials for Indigenous Care Providers in Canada. International Association of Gerontology and Geriatrics Asia/Oceania Regional Congress.

 

2014

 

Jacklin, K. Constructing and Experiencing Dementia in Indigenous Communities in Canada. Ethnicity and the Dementias, Forum. The Centre for Dementia Research CEDER, Linköping University, Sweden.

 

Jacklin, K., J. Bickford, B. Pangowish, S. Lacarte, and M. Blind. "Translating First Nations patient's experiences with diabetes care into a culturally safe model of care." Presentation at the 7thInternational Symposium: Safety & Health in Agricultural & Rural Populations: Global Perspectives (SHARP). Saskatoon, Saskatchewan.

 

Jacklin, K. and Warry, W. Perceptions of Alzheimer's Disease and Related Dementia Among Aborginal Peoples in Ontario. Mnaamodzawin Health Services Board, Sheshegawaning and Zhiibaahaasing First Nations Community Presentation. Sheshegawaning Community Centre.

 

Jacklin, K. (presenter), Warry, W., Pitawanakwat, K.  “Well I could think of one word that starts with F”: Aboriginal people’s experiences with dementia diagnosis in Ontario. 7th International Symposium: Safety & Health in Agricultural & Rural Populations: Global Perspectives (SHARP) Saskatoon, Saskatchewan.

 

Morgan, D., Jacklin, K., Bourassa, C., Kosteniuk, J. Dementia Care in Rural and Indigenous Populations: The Canadian Consortium on Neurodegeneration in Aging. 7th International Symposium: Safety & Health in Agricultural & Rural Populations: Global Perspectives (SHARP) Saskatoon, Saskatchewan.

 

Jones C, Khan S, Walker J. (co-presenter). First Nations Health Data Linkage: A collaborative research and governance approach. Indigenous Health Conference. University of Toronto. Toronto, Ontario.

 

Walker J. (presenter), Latycheva O, Warry W. Respiratory health in First Nations, Inuit and Métis communities: Raising awareness through community outreach and engagement. Indigenous Health Conference. University of Toronto. Toronto, Ontario

 

Warry W. Community Engagement and Participatory Action Research in Aboriginal Communities, Chiefs of Ontario Health Forum, Toronto, Ontario

 

2013

 

Blind, M. “Promoting Neurological Health and Well-Being of Aboriginal People” National Aboriginal Physical Activity Conference, Vancouver, BC.

 

Jacklin, K and Warry, W. Understanding Dementia in Aboriginal Peoples: A Community Based Approach, Biomolecular Sciences Seminar Series, Health Sciences North.

 

Jacklin  K, Warry W, Pace J. Alzheimer’s Disease and Related Dementias with Aboriginal Peoples in Ontario Research Findings. Annual Wikwemikong Health Centre Research Conference Wikwemikong Unceded Indian Reserve.

 

Jacklin , K and Pitawanakwat, K. Perspectives on Aboriginal Aging and Dementia.  Healthy Aging In Rural Northern Ontario Forum (Rural Institute of Ontario and Centre for Rural and Northern Health Research) Sudbury, ON.

 

Jacklin, K. Thinking About Aging and Dementia in Aboriginal Communities in Ontario. CIHR Café Scientific “Mysteries and Challenges: Seniors’ and Elders’ Care” Debajehumujig Creation Centre, Manitowaning, Ontario.

 

Pace, J. (presenter), Jacklin, K., Warry, W. Perceptions of dementia prevention among Manitoulin Island First Nations. Presentation at the International Indigenous Dementia Research Network Roundtable, Kamloops, British Colombia

 

Walker, J. (presenter) and Jacklin, K. Current and Projected Dementia Prevalence in First Nations. Presentation at the International Indigenous Dementia Research Network Roundtable, Kamloops, British Colombia.

 

Walker J. (presenter), McNeil H, Drouin D, Elliott J, Stolee P. Chronic Care for Older persons: How are we Measuring Improvements? Canadian Association on Gerontology Conference 2013. Halifax, Nova Scotia.

 

2012

 

Blind, M. “Understanding from Within: exploring the impacts of neurological conditions on Aboriginal women, their families, and communities” Aamjiwnaang First Nation Community Health and Wellness Centre.

 

Jacklin, K. (presenter), Warry, W. and Pace, J. Using Participatory Approaches to Explore Aboriginal Understandings of Dementia and Dementia Care. Gerontological Society of America Annual Meeting, San Diego, California.

 

Jacklin, K and Warry, W. ‘They knew who she was’ Toward and understanding of diagnosis and care of people with dementia in Aboriginal communities. Alzheimer’s Association International Conference, Vancouver BC. 

 

Jacklin, K. Progress Report: Alzheimer’s Disease and Related Dementias with Aboriginal Peoples in Ontario. Second Annual Wikwemikong Health Centre Research Conference Wikwemikong Unceded Indian Reserve.

 

Pace, J (presenter); Jacklin, K and Warry, W. Caring and Coping: Experiences of Formal and Informal Care-giving Among Aboriginal Communities in Ontario, Canada. Alzheimer's Disease International Conference, London, United Kingdom

 

Warry, W, Jacklin, K, Pace, J. The Culture of Care Giving: Informal care giving for Aboriginal people with Dementia, Canadian Rural Health Research Conference, Levis, Quebec.

 

2011

 

Jacklin, K. Understanding Dementia in Indigenous Communities in Canada. Invited Plenary Speaker.  Alzheimer’s Disease International 26th Annual Conference. Toronto, Ontario.

 

Jacklin, K (presenter) and Warry, W. Forgetting and Forgotten: Dementia in Aboriginal Seniors. American Anthropological Association Annual Meetings, New Orleans, Louisiana.

 

Jacklin, K (presenter) and Wayne Warry. Diverse Experiences: Perspectives on Alzheimer’s Disease and Dementia in Aboriginal Communities in Ontario, Canada. Alzheimer’s Disease International 26th Annual Conference. Toronto, Ontario.

 

Jacklin, K. Warry, W.  Kanasawe, A.  Pace, J., Boesch, L. Progress Report: Alzheimer’s Disease and Related Dementias with Aboriginal Peoples in Ontario Presented at the 1st Annual Wikwemikong Health Centre Research Conference, Wikwemikong Unceded Indian Reserve.

 

Jacklin, K., Warry, W.,  Boesch, L., Kanasawe, A., MacDonald, T. Forgetfulness: Experiences of Alzheimer’s Disease and Related Dementias in Aboriginal Peoples in Ontario. Poster Presentation at Six Nations Research Ethics Forum.

 

2009

 

Jacklin, K. (presenter) and Warry, W. Does Anyone Care About Aboriginal Alzheimer's? Presented at the Association for Anthropology and Gerontology Conference on Aging and the Indigenous People of North America. Norman, Oklahoma.

Jacklin K., Breif, E. Hulko, W. Internation Indifenous Dementia Research Network Meeting. Open Workshop Forum. Ancillary Meeting of the Alzheimer's

Association International Conference on Medical Education, Edmonton, AB.